Waiting For A Transplant

Tuesday, December 28th, 2004

As I stated here, on October 29, 2004 I was placed on the Transplant List for a kidney and pancreas. Since being placed on the list, some things in my life have changed. For instance, I now have a cell phone in order for the Transplant Hospital to have 24/7 access to me should organs become available. Twice a month, the dialysis clinic sends blood to the Transplant Hospital for tests and analysis, and for use in comparing available organs for compatibility. My wife and I have not traveled anywhere, and plan to stick pretty close to home for the foreseeable future (time will be of the essence if a set of organs become available). None of these changes surprises me because my wife, my doctors, and I discussed these issues many times after my kidneys failed.

One thing that has surprised me is how much I ponder the coming procedure and its effects on both myself and others. Once my transplant occurs, if successful, my diabetes will be cured as well as my kidney failure. This means no more daily shots of insulin, no more pricking my fingers for blood-glucose testing, and no more waking up in the middle of the night with low blood sugar. Although it shouldn’t be necessary, I’ll probably stick to diet soda (real soda now tastes sickeningly sweet to me) as well as most of my sugar-free diet. Also, my doctor has told me that in some of his patients, after having the transplant some of the bad effects of diabetes have been slightly reversed, such as neuropathy. He was very careful to warn me that it doesn’t happen to everyone, and the chances are small that it will happen to me, but I still look forward to it. The feeling in my feet has been little or none for many years now, and to get some of that back would be nice. For one thing, it would help my balance. Right now, even though I do not drink alcohol, I would be hard-pressed to pass a sobriety test if I had to stand on one leg.

The one thing that I ponder the most is the fact that in order for all of these wonderful things to happen for me, someone else must die. The fact that I need both a kidney and a pancreas precludes me from using a living donor. Also, my diabetes means that a kidney transplant without the pancreas would, at most, alleviate my kidney problems only for a few years before the diabetes would claim the new kidney. So, for me anyway, the dual transplant makes sense medically.

However, when I am lying back in the dialysis chair during my treatments, and my mind wanders, I usually end up thinking about that unknown someone who will have to die in order for me to go on. Will they be younger or older than me? Will it be a male or female? White, Black, or Hispanic? Mother or Father? Son or daughter? Star Athlete or Chess Club Geek? Will they die in an automobile wreck or some accident around the house? Sometimes I even wonder about such stupid things like if the donor will be a conservative or liberal. It never ends. One time, I even wondered what would happen if the donor turned out to be someone I knew really well.

Of course, I know that thinking about such things is pretty useless. It doesn’t help me in the least to deal with my medical problems, and it really only makes me more anxious about the whole transplant procedure. Yet, I am unable to stop thinking about the person who will enable me to reap all of these medical benefits. Of course, there will never be anything that I’ll be able to do for this person or their family to thank them for the gift they’re going to give to me. Indeed, if it is their wish, I may never know who the donor was. Even so, I know I will feel a lot of warmth and love for this person and their family; how could I not? I know that I’ll do my best to take as good care of myself as possible so that the transplanted organs will have the best chance to succeed.

This transplant procedure, when it takes place, will definitely be the most important turning point in my life. It will enable me to continue to see my children, it will allow me to continue to love my wife and family, but most of all it will enable me to continue to be me, for better or worse. These are the reasons that I look forward to it the most.

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5 Responses to “Waiting For A Transplant”

  1.   Martin Says:

    I remember when you got your lens implants and regained your sight. I was so very happy that you were able to get back something that the diabetes had taken away from you… your sight. I am praying that your transplant will be equally as successful. Also… I learned today that my cholesterol(sp) is at 125! Yippie!

    Thinking of both of you…

    Marty

  2.   Caoilfhionn Says:

    We deal with things as best we can. And it has to be good enough. I’ll keep you and your family in my prayers. It’s interesting when I do some reading here I notice that you’ve been able to claim back some of the things your diabetes took from you. That is an incredible thing. The wonders of modern medicine.

    My husband has had two bypass surgeries, both before he was 40. I look at him now that he’s 50, and think to myself–this really has been ‘borrowed time’. If he had been born 20 years earlier, this could have never been. So I look at every day with him as a gift. Because it truly is.~Cao.

  3.   Gpcii Says:

    Nick,

    You and your family are always in my prayers. My children are ages 2-5, I have four of them. There is hardly a night that goes by, as we pray together, that the two oldest don’t mention you in thier prayers. They do this without prompting.

    I truly enjoy your blog. Keep your hopes up. As each day is a new beginning, and another chance to live life.

    God bless,

    G. P. Clarke Jr.

  4.   Jill Fallon Says:

    What an amazing story that I found at the Carnival of the Vanities. I wish you only the best. I’d love to hear more of how you see your life now before the transplant.

    What a terrific gift you will receive when you get your transplant. What a terrific legacy to leave once one’s organs are no longer needed. I’m a strong believer in and promoter of organ donation over at Legacy Matters.

    BTW that story Christmas with Louise was hysterical

  5.   Darleen Says:

    Hi. I got here via Carnival of the Vanities.

    I understand your dilemma…waiting and wanting something that will come from the tragedy of another.

    Just keep in mind that the tragedy will happen regardless of what you wish or think. Life happens in all its variety. And do know that for many families, being able to donate organs is one way they are able to cope with the loss of a loved one; that some good comes from their tragedy and their loved one “lives on” helping others.

    One of my best friends went through a kidney transplant three years ago … luckily his sister was able to donate for him and they celebrate his new “birthday” every year.

    I’ll remember you in my prayers that your wait will not be long and that everything turns out fine.